Identifying Families’ Needs during Palliative Care Post-stroke: A Qualitative Study
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When a family member has a stroke and dies, this can be very difficult for families. We do not know very much about the experience of family members as they care for someone who has had a stroke and passes away, or how family members do after the death. |
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This research project aims to examine family caregivers’ experiences and their health and well-being during palliative care and bereavement post-stroke. By understanding your experiences and those of others like you, we will develop programs to assist future families as their loved one passes away after having a stroke.
What’s involved?
Your participation in this project involves a confidential, recorded telephone interview that will last approximately 1 hour. You will receive a $25 visa gift card in the mail as a thank you for your participation.
Who can participate?
If you have provided care for a loved one who had a stroke and passed away within the past 12 months, we are interested in hearing about your experience. One member per family affected by stroke will be accepted into the study. Family members should be 18 years of age or over and speak English. We are interested in speaking with males and females from across Canada.
What happens next?
If you are interested in being involved in this study, we will first ask you to answer some questions over the phone to determine if you are eligible to participate. If you are eligible, the research assistant will set up a time and date for the telephone interview. If you are not eligible, your personal identifiable data will not be kept and you will not be contacted further.
Call us at 1-833-297-2865 (toll free)
or 416-978-5694
Email caregiving.study@utoronto.ca
Read the study consent form here.
Looking for support?
If you are in need of professional counseling, we suggest you speak with your family physician for a referral to a psychiatrist/psychologist whose services may be covered by your provincial health plan.
You can find information and support on palliative care, end-of-life care, and grief and bereavement at the Canadian Virtual Hospice www.virtualhospice.ca and Bereaved families (Ontario-specific) www.bereavedfamilies.net.
Your participation in this project involves a confidential, recorded telephone interview that will last approximately 1 hour. You will receive a $25 visa gift card in the mail as a thank you for your participation.
Who can participate?
If you have provided care for a loved one who had a stroke and passed away within the past 12 months, we are interested in hearing about your experience. One member per family affected by stroke will be accepted into the study. Family members should be 18 years of age or over and speak English. We are interested in speaking with males and females from across Canada.
What happens next?
If you are interested in being involved in this study, we will first ask you to answer some questions over the phone to determine if you are eligible to participate. If you are eligible, the research assistant will set up a time and date for the telephone interview. If you are not eligible, your personal identifiable data will not be kept and you will not be contacted further.
Call us at 1-833-297-2865 (toll free)
or 416-978-5694
Email caregiving.study@utoronto.ca
Read the study consent form here.
Looking for support?
If you are in need of professional counseling, we suggest you speak with your family physician for a referral to a psychiatrist/psychologist whose services may be covered by your provincial health plan.
You can find information and support on palliative care, end-of-life care, and grief and bereavement at the Canadian Virtual Hospice www.virtualhospice.ca and Bereaved families (Ontario-specific) www.bereavedfamilies.net.
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